Self Harm and Endometriosis: A Hidden Connection

By Erin Kershaw (Clinical Support Worker)

This week marks the start of Endometriosis Awareness Month, a global campaign to raise awareness, educate and challenge stigmas. Endometriosis is a chronic condition that affects millions of people worldwide and currently 1 in 10 people assigned female at birth are affected. Endometriosis occurs when tissue similar to the lining of the uterus grows in other parts of the body, such as the ovaries, fallopian tubes and pelvic cavity, which can cause a variety of symptoms, including pelvic pain, heavy bleeding and fatigue.

For many people with endometriosis, these symptoms can be debilitating and have a significant impact on their quality of life. In some cases, it can also lead to mental health problems, such as anxiety and depression. According to NHS statistics, in the UK it currently takes 8 years and 10 months to get a diagnosis.


The Link Between Endometriosis and Self Harm
There is a growing body of evidence to suggest that women with endometriosis are at increased risk of self harm. A study published in the Journal of Pain found that women with endometriosis were more likely to report self harm behaviours than women without the condition. The researchers believe that the chronic pain and other symptoms of endometriosis can contribute to self-harm. Pain can be overwhelming and lead to feelings of hopelessness and despair. Additionally, the social isolation that can result from endometriosis can also increase the risk of self harm.


What Can Be Done?
If you are struggling with self-harm, it is important to seek help. There are many resources available to support people with self harm, including hotlines, support groups, and therapy.

Here are some additional tips for coping with self harm:

  • Talk to someone you trust about how you are feeling. This could be a friend, family member, therapist or doctor.
  • Find healthy ways to cope with stress and negative emotions. This could include exercise, yoga, meditation, or spending time in nature.
  • Avoid triggers that may lead to self harm. This could include certain people, places or situations.
  • Seek professional help if you are struggling to cope on your own. 
  • Find local endometriosis support groups at https://www.endometriosis-uk.org/support-groups 



How can you get involved with Endometriosis Awareness Month?

  • Wear yellow, the official colour of endometriosis awareness. 
  • Attend or host an event, such as a workshop, seminar, or walk. 
  • Share your personal story, if you or someone you know has endometriosis. 
  • Ask your local MP to act. 
  • Educate others about endometriosis, including its symptoms, diagnosis and treatment options. 
  • Provide information on support groups, resources and advocacy organisations. 



Conclusion
Endometriosis can be a difficult condition to live with, but it is important to remember that you are not alone. There are many resources available to support you, and you can get through this. Remember: You are not alone. There is help available.


If you or someone you know needs support for self harm, please contact us.

You can find out more about Endometriosis Action Month 2025 here.


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Additional Notes:

  • It is important to note that not all people with endometriosis will experience self harm.
  • If you are concerned about your risk of self harm, please talk to your doctor or another healthcare provider.
  • If you are struggling with self harm, please reach out for help. You are not alone.


Disclaimer: This blog post is for informational purposes only and should not be construed as medical advice. Please consult with a qualified healthcare professional for any questions you may have regarding your health

Source: Estes, S. J., Huisingh, C. E., Chiuve, S. E., Petruski-Ivleva, N., & Missmer, S. A. (2021). Depression, anxiety, and self-directed violence in women with endometriosis: a retrospective matched-cohort study. American journal of epidemiology190(5), 843-852.

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